I would not take it again, knowing that this disease could results from it. We're now at the booster stage and I will NOT get one until I am diagnosed, on Prednisone and back to feeling better. Had I known the first shot last May would start my neck and shoulders and then my second jab in August, just 10 days before my neck, shoulders, arms and right hand put me in excrutiating pain, I probably would NOT have gotten any vax. This disease does not run in my family and started virtually over night. I didn't even know there was such a thing as PMR.

I know nothing about what the vax causes, all I know is my story. Your doctor's advice sounds good. Ultimately, the choice is yours - somewhat. Good luck whatever you decide.

I also experienced a PMR flare almost immediately after receiving the Covid vaccine. I took prednisone which worked very quickly to relieve the symptoms and then I was able to successfully taper off over a three-month period. I am now in remission. I agonized for weeks over whether to have the booster shot. My rheumatologist opined that if I did contract the virus I would have a worse outcome because of my reaction to the vaccine and thought I should go ahead with the shot and take prednisone again if needed. With much trepidation I scheduled the shot and was very pleased when I did not experience another flare of PMR. Later on, I did come down with the virus but had almost no symptoms. Everyone's journey is different and each individual must weigh the options and try to arrive at the best decision. I wish you luck and hope you achieve remission soon.

I got my first two Moderna vax's in February. Pre-PMR. No apparent issues. Then I was diagnosed with PMR in September. Until getting on this group, it never occurred to me that what I thought was a flareup of back issues which I've dealt with since my 30's (LONG time), might instead have been my introduction to PMR. But I cannot remember exactly when that happened - wish I could. Before August, I know - before I started having other pain issues in my arm and shoulder. Anyway, once I was diagnosed and got on this group, I made up my mind that I wasn't getting the booster. But my primary care doctor insisted that I already have PMR, and am immune compromised, and I should really get the booster now for sure. At that time I was on 10mg. of prednisone and completely out of pain. Got the booster against my better judgement. Again, no issues with it. Subsequently started going to a rheumatologist. He said that because I was on the pred., the booster would most likely be LESS effective than it might have been had I not been on the pred. I guess the moral of this story is, while much of what we all are dealing with is common and expected, but each of us have a different story. The more we can glean from this group, the more we understand what we can expect, and how we might choose to deal with it.

I agree with you regarding research. PMR confuses me and prednisone can't be the only answer. I have never in my life had a medical condition that I didn't understand. Can an osteoarthritis condition be the pain that I think is PMR? I am completely mystified. If this condition is new, could it be related to covid vaccine?
Take care everybody.