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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Your story brought to light a similar path to trying to understand what was going on with my muscles in the earliest days of PMR before I knew what it was or that I had it. The pillow buying!!! OMG, it was my neck and back of head that were so uncomfortable. I too bought a 4149 pillow!!! And my blankets were impossible to pull up around me in the night...my shoulders hurt so much...I kept thinking, I need a very light puff blanket so I can maneuver it at night! Turning over was horrible and repositioning the blankets (not that heavy) was impossible. So, EARLY CLUES. Just good to share with others. Thanks for the pillow reminder!!! OMG
Replies to "Your story brought to light a similar path to trying to understand what was going on..."
This is so funny. My neck didn't bother me with PMR, but it was incredibly stiff and sore with GCA, and I bought pillows too, just thinking my problem was a stiff neck. I was dying to go to a chiropractor, but really afraid that the quick manuever they do to turn the neck would break mine so I never made an appointment. I had PMR and GCA way before I received COVID vaccines. The booster, just a couple of months ago, did not effect me at all. Now that I have osteoporosis, I read that it is best to use the smallest pillow possible to support the head - so I am using a small worn out throw pillow which works great. Best wishes for a happy and pain free New Year. Teri
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...and the pillows never worked and I'm stll trying to find the right one. Actually made one of my own with chipped memory foam. It's not too high and it's not too firm and seems to be the best so far. The blankets. When my hips worked I could kick them off with my legs. Now...I don't even know how I get out of bed. I do know getting rolled up in the sheets is not fun. I have a light, but warm comforter and that works and I started sleeping in the nude so I didn't get hitched up. Also getting up to pee in the night and getting a nightgown up in time is just nuts! Yes early clues, but I did not put 2+2 together at that time.