← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@milld835

I had never heard of it either. It started overnight but I totally think it's related to the vax. Even more, I think it possibly started after the first vax as my neck bothered me all summer, so much that I bought 4 new pillows, one $149 to relieve my neck. My first vax was May 4. These are awful months of waiting. I had googled my symptoms and FINALLY asked my fam doc to do blood work for RA. I even asked for blood work at the ER. That's when they found out my CRP levels were way too high. So now I wait for the neurologist to get back from Christmas vacation. I hope you're doing better now. I hope I will be doing better after I start Prednisone (if).

Jump to this post


Replies to "I had never heard of it either. It started overnight but I totally think it's related..."

Your story brought to light a similar path to trying to understand what was going on with my muscles in the earliest days of PMR before I knew what it was or that I had it. The pillow buying!!! OMG, it was my neck and back of head that were so uncomfortable. I too bought a 4149 pillow!!! And my blankets were impossible to pull up around me in the night...my shoulders hurt so much...I kept thinking, I need a very light puff blanket so I can maneuver it at night! Turning over was horrible and repositioning the blankets (not that heavy) was impossible. So, EARLY CLUES. Just good to share with others. Thanks for the pillow reminder!!! OMG