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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
It's terrible that you have not been getting the attention and treatment that you need. And that now that they know what it is you aren't getting the prednisone. Don't wait one minute longer than you have to. Get that prednisone going! If in fact PMR is the correct diagnosis, that prednisone will seem like a miracle to you! And it's about time!! If the prednisone doesn't work for you, then the doctors will need to keep looking.
Replies to "It's terrible that you have not been getting the attention and treatment that you need. And..."
PMR does respond dramatically to the proper dosage of prednisone, which I hope you can get soon. As @aspine mentioned, if your symptoms do not go away with prednisone, it's something else. I sympathize with you - the pain and stiffness of PMR was off the charts for me, unlike anything I experienced before.
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Yes I agree. This neurologist is new to me and we've only spoken on the phone due to Covid. He has great reviews and I feel confident he will get to the bottom of it. We just needed to do more blood work to rule out Lyme disease, because I had been bitten around the same time and the bite lasted for about 3 weeks. Waiting for the New Year's miracle. Now I have the blood results and the clinic is closed til the 4th or 5th. Missed out on a Christmas vacation myself because the pain would not permit. For the most part, I've stopped crying with the pain, but sometimes I'd like to pound on something but my hands are too sore. 🙂