Kelly posted on the two fb ntm support groups prior to starting her own group. I know her videos where she demonstrates airway clearance, postural drainage, etc are very helpful to newbies. She lives in Denver so has the advantage of NJH for all her pulmonary care. She does share her personal info re for example her disabled daughter (deaf if I remember right), fireman husband and the fact that she is a doctoral candidate. Some in support groups share personal info and some don't. This shouldn't be an issue.

I didn't read many if her posts on those fb pages or follow her to her own group because she believes that one can avoid a MAC infection by taking what I consider draconian steps . I believe that ntm's are everywhere and there is no way to completely avoid inhaling some. That being said I will never sit in a whirlpool again (very sad) for example and I continue to rigorously do my nebbing and airway clearance 2x a day every day although it is very uncomfortable due to the state of my lungs and it takes over an hour each time.

There are other things I do to try to keep MAC gone from my sputum samples as it has been gone a while now. Everyone must decide what to do while living with this chronic disease. That is a personal decision.

Many people agree with Kelly and appreciate and follow the advice she gives. She has devoted a great deal of her time over the years researching and sharing. It is not a cult. It is a fb support group for those who find the group useful.

Just like this group.

I totally agree with you. I joined that group, and although found some articles very informative; found that she was a way off base on other things and trying to control her audience. She’s a bit scary if you ask me. I posted a question on another facebook lung disease group; simply asked the question if this group was open to questions about different matters, and KellyKats blocked me from her facebook group!!! How controlling is that! I’m glad I found this place here on mayoclinic.