You are a smart lady. It took me about 2 months to see what you saw in a short while. Whoever or whatever is named "kellyKats" is against most everything. Readers get brained washed. This KellyKats (???). Spouts info like an authority. But the description of this "person" is that she has many, many, possible diseases. Mother had bronchiectasis; handicap child; etc. etc. Maybe this is true or maybe it is just to have more people relate to "her." Not sure what it is, but I got a very uncomfortable feeling. Is some company "mining data" for a purpose? My daughter joined the group as a family member. She was called for pointing out that the research article that was referenced did NOT say that "guluten is an opoid" but that is what she stated loud and clear. I almost feel that members are being brainwashed and this "KellyKats" is the cult leader.

Hi, Sue-

I, like you, run everything through my "personal filter." I have 100% adopted the airway clearance portions suggested but have filtered out some of the precautions suggested. If something makes sense I try to make it fit into my life but also have not gone to extremes.

I am also mindful that this is information coming from someone who is living through this and not as medical advice from a professional. I will say that I struggled with the decision to get a bronchoscopy after reading through some of the posts about the bacteria they can leave behind. I went to NJH in October 2021 because I was not getting any answers to the end-stage bronchiectasis that showed on my first CT scan in October of 2020 and my pulmonologist here was not as concerned as I thought he should be and put off a bronchoscopy here because of Covid and then at my 6 month appointment left that decision to me. I thought by that deferral to me that maybe it was not a necessary diagnostic tool but was continuing to get worse and had been on antibiotics almost every other month to keep myself functional. I had my first bronchoscopy on a Tuesday at NJH and the Doctor found a nodule on my right middle lobe orifice that had not been detected on any of the 3 CT scans that I had in the past year but he was using the greatest of caution and did not want to do a biopsy because it did not look like a typical cancer to him. I was then sent for another interventional bronchoscopy with ultrasound on that Thursday at Saint Joseph's in Denver for a biopsy. Once the doctor had the ultrasound to take a better look it was determined that the nodule was actually a AV malformation. After many test for all the other usual causes of bronchiectasis we are fairly certain that this malformation is blocking me from clearing my right middle lobe. I will go back in the spring for either a resection of that lobe or a coiling of that AV by Interventional Radiology.

Phew...that was a lot of information. The conclusion is that although I find much helpful information from the Facebook group and members it has to be tempered with my own good sense. I hope that anyone in the group would not put off a procedure or test because of fear from something they have read. I have learned many other helpful things from the group like being able to ask for Levalbuterol instead of Albuterol before my 7% and then also being able to ask for a lower dose of the Levalbuterol. I would not have known any of that and would have suffered with the effects that Albuterol was having on my heart. My culture from my bronchoscopy also came back showing pseudomonas and it has been helpful to search through the group for others experiences with the different drugs like I would here. Just another resource but for me a little more convenient. I manage a business Facebook page so am on Facebook daily and can do some quick searches or scroll through new posts.

Happy New Year. I am hoping for happiness and good health for us all in 2022.