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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
I def try to keep active, but sometimes the exhaustion is overwhelming. Then I rest. Mornings are something I can't describe, or waking thru the night. Getting up to use the washroom and not quite making it because you can't get outta bed fast enough. I know, I'm not telling you anything you don't already know. Right now I'm sitting with the heating pad on my neck and shoulders. By mid afternoon, I should be improved.
Replies to "I def try to keep active, but sometimes the exhaustion is overwhelming. Then I rest. Mornings..."
It's terrible that you have not been getting the attention and treatment that you need. And that now that they know what it is you aren't getting the prednisone. Don't wait one minute longer than you have to. Get that prednisone going! If in fact PMR is the correct diagnosis, that prednisone will seem like a miracle to you! And it's about time!! If the prednisone doesn't work for you, then the doctors will need to keep looking.
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Heat also helps. Some people on this site have mentioned that an infrared heating pad is helpful. I still use a regular heating pad and a heated mattress pad at night.