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@scpartain

Exercise and movement, as painful as it is, definitely helps. The pain gets worse from sitting or lying down and typically improves with movement during the day. It's hard even for those close to you to understand the pain and frustration you're going through because the symptoms are not so obvious to an observer. I have read that it's sometimes referred to as the invisible disease. I hope you find some relief soon, as I know from experience that the symptoms are almost unbearable.

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Replies to "Exercise and movement, as painful as it is, definitely helps. The pain gets worse from sitting..."

I def try to keep active, but sometimes the exhaustion is overwhelming. Then I rest. Mornings are something I can't describe, or waking thru the night. Getting up to use the washroom and not quite making it because you can't get outta bed fast enough. I know, I'm not telling you anything you don't already know. Right now I'm sitting with the heating pad on my neck and shoulders. By mid afternoon, I should be improved.