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@milld835

Thank you for this. I have felt so isolated in this. It is as if I can't make anyone understand the pain that it's causing. My hope is that prednisone will work. I'm so glad you're back in remission. I found this web site while looking for some mild exercises I could do to keep somewhat mobile. All the best to you.

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Replies to "Thank you for this. I have felt so isolated in this. It is as if I..."

Exercise and movement, as painful as it is, definitely helps. The pain gets worse from sitting or lying down and typically improves with movement during the day. It's hard even for those close to you to understand the pain and frustration you're going through because the symptoms are not so obvious to an observer. I have read that it's sometimes referred to as the invisible disease. I hope you find some relief soon, as I know from experience that the symptoms are almost unbearable.