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@irene5

The pain in my chest has not been resolved. (Yet) It is very scary when it happens. The pain was so bad in early fall it was thought I had an aortic aneurysm, but thank the good God I did not. I’ve had sooo many tests. I do have severe spine issues which cause neurological symptoms. Acupuncture was suggested for pain, but my insurance doesn’t cover it. I can’t have spine surgery because the MAC has left me a tad too thin. I recently had a bronchoscopy and am waiting for the results. The MAC will still be there no doubt because the tests that did come back suggested “illness.” Presently, I am on the same regimen that Terri (our mentor) is on. (2nd year of that) Good nutrition and mindfulness are helpful. In terms of dealing with it, I guess I just take it one day at a time. I’ve cried. I’ve screamed. I’ve been angry because I had plans for my retirement. Mostly I am grateful I am still here. I do have tramadol for pain. I have a medical Marijuana card. I do not use it. I have never been a coughing gal. I don’t know if I have helped at all, but sometimes just knowing someone else has been in similar shoes and also has had that horrific chest pain and no cough is validating. I do not believe there is a cure for MAC. It can always come back after negative cultures. Hugs, irene

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Replies to "The pain in my chest has not been resolved. (Yet) It is very scary when it..."

Irene - thanks so much for sending more information. I will pass this on to my friend Bonnie, who will be joining us at some point. (I have to show her how to navigate the system.) I am so sorry for all that you have gone through with this; I do know that Bonnie will find some comfort in knowing she is not the only one with these sorts of symptoms. Are the doctors you mentioned ones you have worked with? If anyone else has anything else to offer on my questions, I would greatly appreciate hearing from you. Thanks so much, Pam