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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
That is fantastic news!!—-Did you have a cavity in your lung when diagnosed??? are you not coughing or SOB?? You probably aren’t but I was just wanting to see someone that is so fortunate of not having the organisms that you are able to be symptom-free. I would presume that is just wonderful!!. Thank you so much.
I just had surgery about four days ago and my right upper lobe Of my lung was removed so I’m hoping that it will help my symptoms and I will be a stopping coughing in the future and puttinga Me in remission for a couple of years🙏🏻🙏🏻🙏🏻🙏🏻 I am still in hospital at the Univ of Colorado. Laparoscopy but still major surgery.
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Do you have Dr. Mitchell for your surgeon? I will have my right lobe removed by him in April. Pray you are doing fine. Is it a long and painful recuperation? Please add any guidance you have for me. Best wishes for speedy health!!!!!!!
Hoping for a speedy recovery @judyhodgern. I will have surgery on March 11, 2020. Surgeon will remove my right middle and lower lobes. Had MAC in 2012 and 2018. When I was diagnosed with Bronchiectasis in 2012, my right middle lobe was affected. In 2018, infection went down further to my lower lobe. I am really scared. I don’t want to be on antibiotics the rest of my life and I don’t want the infection to eventually destroy my entire right lung that’s why I decided to go for the surgery. Surgeon will plan for VATS (laparoscopic) but there’s a 50% chance that he will do open surgery. Please keep me in your prayers.
How are you doing, Judy?
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@judyhodgern Hi I do not have shortness of breath, fantastic, and I do cough occasionally, maby from the Bronch or my allergies but not like when I had MAI raging through my lungs. I had a few cavities and they have now closed but left scaring unfortunatly. So yes pretty much symptom free, phew. I hope you will be soon too. Are you also on the big 3 antibiotics.Take care and look after yourself after the surgery. Heather