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After failed radiation and Lupron what comes next?

Prostate Cancer | Last Active: Jan 7, 2022 | Replies (18)

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@seabiscuit

I will give you a quik synopsis. 2013 i found Out I had prostate cancer. I had just come off Testosterone shots and had a Psa of 10. They did a Biopsy gleason score of 6 with 4 out of 12 needles showing cancer. They said i had time to choose a coarse of action. I choose radiation. I had 45 treatment stating in May of 2014. For 5 years Psa went up and down however it never got below 1.25. Two years ago I noticed it trending upwards. I contacted my Urologist he said we would keep an eye on it. It needed to double. One year after that it got up to Psa of 4. I got a petscan with Auxumin in August of 2020. The images were a little shady but it seemed to show cancer in prostate and Inglinal nodes. I was told that the cancer had metastasized. I went to clinic in Tampa. I live in Tallahassee. At this time covid was in full swing -motels and hotels were closed. So it was bacically a 14 hour wasted trip. I go there with latest and greatest petscan. They couldnt read the XRAY. This is a major cancer center. They wanted to do their own test and i had to come back. This trip was very long and uncomfortable for me. So i looked around. I had telephone conversation with a cancer clic in Birmingham. Sent them xrays with the report and all my files from my urologist and my cancer clinic in Tallahasee. This clinic specializes in Cryotherapy. Plus it was only 1 hour drive from brother in Montgomery Alabama. He said I could stay long as i needed. So last December 1 I went to clinic for biopsy and cryo. The doctor did biopsy and didnt find any cancer. Spent night at brothers because biopsies are painful without pain meds. Came back home. Three months later did another Psa test. I was now at 5. Still dealing with Covid. Clinic closure and getting scheduled. So my Urologist had me do a bone scan and body scan. No cancer anywhere. However now Psa at 6. He set me up with an Oncologist here in Tallahassee. He wanted to do his own scan at his office. I had to wait until August cause insurance Only paid for one a yeart and this scan is very expensive ( Petscan with Auxumin). It shows in prostate but not in nodes. He gives me speech about cancer having metastasized due to radiation failure even though it appears its still in the prostate. So Oct1 2021, I get my first Lupron shot. Due for another one in Jan. Hope that helps. I am just looking for other options. Seems to me my cancer is localized. Since Lupron does not stop the disease just looking ahead. Until now I was told by my urologist that more radiation was not a good idea and prostate removal after radiation was more difficult. Thats why I am here looking for answers. By the way I am 67.

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Replies to "I will give you a quik synopsis. 2013 i found Out I had prostate cancer. I..."

Hi, Prostate removal after radiation can be done very successfully. My father had it 12 years ago and he is now 90. He had original radiation at the age of 68 so this has been a long history. His surgeon was at Mayo in AZ and did an excellent job. Difficult, yes, impossible, no. I would suggest you see an expert at a 'center of excellence', Best wishes.