← Return to What helps the symptoms of Small Fiber Neuropathy?

Discussion

What helps the symptoms of Small Fiber Neuropathy?

Neuropathy | Last Active: Dec 12, 2023 | Replies (131)

Comment receiving replies
@dianecostella

If you have small fiber neuropathy diabetes has nothing to do with it. I have it as well and I am not diabetic. I have the tingling in my fingers and toes and it has never gone away neither has the intense burning in my legs. I take Gaberpentin but I am in the process of switching to Lamotrigine. It’s a long process but my neurologist thinks it will manage my pain better. I have had many tests including genetic testing and they can’t find the source. While I have small fiber neuropathy, I have the autonomic type which affects the autonomic nervous system which affects normal everyday functions that we have no control over, ie, bladder, digestion, bowels, breathing.

Jump to this post


Replies to "If you have small fiber neuropathy diabetes has nothing to do with it. I have it..."

I have neuropathy definitely brought on by chemotherapy. It's in my feet. I also have something going on in my abdomen area and my head. All of it started after chemotherapy treatments; which I only had two treatments and my oncologist said that I couldn't handle anymore treatments. So they went ahead and did the mastectomy on my right breast with reconstruction now completed. What exactly is autonomic nervous system. My symptoms in the beginning were mainly with not being able to breathe properly, not being able to take deep breaths, which resulted in going to the ER many times. I would get very warm sensations and lightheadedness. Also, I had a tightness around my ribcage areas. This all got a little bit better over a few months. I had tests done at the gastroenterologist and went to see a thoracic surgeon and through all those tests, nothing was found to be wrong. The thoracic surgeon told me to have a discussion with my oncologist. I did some of my own research and on this Mayo Clinic forum I someone posting about neurotoxicity and that there are many clinical trials being done. Stated that oncologists really don't know how to take care of this. I saw that there are a few drugs that they may prescribe. I'm seeing my oncologist soon; so hoping he has something to say about why he hasn't mentioned anything about this possibly happening to some chemotherapy patients.