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@hydrang3a

Hi Heather…this is my second round of Arikayce. We connected 3 years ago when I as on it the first time. The lose he’s you recommended helped then but now I have what feels like a chest cold…raw irritated lungs …this is only my second week of Arikayce and I am hoping it is in reaction to this strong nebulizer. But also worried it could be something worse. I go nowhere….and am boosted etc. I was set for surgery twice but doctor cancelled twice as my 3cm was slightly improved each time…most recently after 4 months IVs. But this is a long haul and I just want to feel well…..hope to hear some encouragement and ideas about why my chest is raw and I get hot flashes and chills occasionally.

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Replies to "Hi Heather…this is my second round of Arikayce. We connected 3 years ago when I as..."

Heather …I meant losenges…..and my 3cm is my cavity. I have both MAC and m.Abscessis

@hydrange3a unfortunately it is a long haul with these bugs but sounds like cavities are getting smaller which is great.The hot flashes can be part of MAC, not sure about the chills, but cavities reducing is positive.