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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@janovr

@kathyhg ... I too am EXTREMELY nauseated ... debilitating !
I could not tolerate the medicine in 2015 due to nausea. My nausea is debilitating today.
Nothing helps!😩

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Replies to "@kathyhg ... I too am EXTREMELY nauseated ... debilitating ! I could not tolerate the medicine..."
heathert | @heathert | Nov 13, 2019

@kathyhg Sorry to hear that, I only had nausea on the meds not off but I found ginger lollies and licorice and ginger tea helped alot.

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Terri Martin, Volunteer Mentor | @windwalker | Nov 14, 2019

@kathyhg Since your nausea is extreme, you may want to have your stomach checked for mac. It can sometimes diseminate there. There are other 'comorbid' diseases that can come with mac that would affect your stomach. For example: a mutated version of CF, etc. That is yet one more reason I like going to the Mayo Clinic; they can do genetic testing. Just an FYI, Mayo does offer a genetic disease testing panel for $150.00 to screen for hidden genetic issues. You donot need to be a Mayo patient to purchase it. It can be found on the Mayo website.

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