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Welcome to the NETs Group! Come say hi.

Neuroendocrine Tumors (NETs) | Last Active: Nov 29, 2024 | Replies (429)

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@kate12345

@elm60, thank you for your reply and sharing a little bit of your story with me. I’m glad to hear your 30-month MRI and labs were stable. That must be such a relief. I’m not on Facebook, but perhaps I’ll join to participate in that group. Also, to answer your question, I haven’t had any flushing or diarrhea or any other symptoms of a functioning tumor. They found the tumor when I went to the ER with abdominal pain and vomiting the day after Thanksgiving, but I’ve had no problems since then.

-Kate

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Replies to "@elm60, thank you for your reply and sharing a little bit of your story with me...."

Kate, if you prefer not to go on Facebook, you are welcome to continue to connect with members here and to join the monthly NETs support group hosted by a Mayo Clinic social worker. The meetings are held online on Zoom monthly on the first Thursday every month from 5:30 to 7:00 p.m. Eastern time. @elm60 can tell you more about the monthly group too.

Here's more info about the upcoming meeting:
- Neuroendocrine Cancer Support Group Meeting https://connect.mayoclinic.org/event/neuroendocrine-cancer-support-group-meeting-fl-1-108/

Hi Kate12345. It’s good to hear you are not having any syndrome issues. I love Colleen’s comment about just joining the zoom meetings, that would be fantastic! Let me know if you have any more question! I will
Be glad to help in any way!