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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@anniepie

Thanks Judy @judyhodgern ! Your reply is really appreciated.
I almost laughed and cried when I read the facial skin and eye discoloration can be long lasting when taking Clofazamine and -- laugh or cry -- it affects between 75% and 100% of people who take Clofazimine. I mean -- where do they get all these awful drugs from to treat NTMs???? (Laugh). We really do have to put up with a lot and my heart goes out to everyone

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Replies to "Thanks Judy @judyhodgern ! Your reply is really appreciated. I almost laughed and cried when I..."
Terri Martin, Volunteer Mentor | @windwalker | Nov 2, 2019

@anniepie, @judyhogem, Hi all. Just want to add that not all drug treatments are horrible for everyone. My treatment plan had zero side effects (can click on my photo icon to read about mine). Depending on what your susceptibility tests show, you may not need the harsh meds to treat mac. I have tested negative for three years now.

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