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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 4 days ago | Replies (6026)

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@faust73

Morning Chris I never had neuropathy before until I got my Pfizer COVID shots but getting the booster really got the neuropathy to be much more intense. My symptoms are bottom of my feet go numb my legs burn - tingling and pins and needles. I take diazepam for the nerves and it helps some but wears off quickly as seeing I can only take 2 pills a day. I haven't been diagnosed by a doctor per say going to see a new neurologist end of January. I go for pain management and between having issues with my back and the neuropathy (which the Pain Management told me I have) it's been a nightmare for me. Having all these issues have caused me to not be able to do anything can't go for long walks with my pups and an effort sometimes just to function. I've been working out over 30 years I have a full gym in my house but some of the machines I can't use because it causes the neuropathy to increase. I'm going for physical therapy this month and hope that will help. As far as cannabis I know people who have highly recommended using it for pain relief but I take so much medication I have no idea what I should do. I wouldn't know where to begin or how to use cannabis everything just confuses. I'm getting more and more depressed and very frustrated. Any information you can give me would be much appreciated. Jo

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Replies to "Morning Chris I never had neuropathy before until I got my Pfizer COVID shots but getting..."

I had a similar experience with the Pfizer vaccine. I won't be getting the booster. My blood work indicates an immune-mediated peripheral neuropathy. The good news is that the symptoms improved substantially about 9 months after the last vaccine. There is a Facebook group for vaccine-injured people called Neuro V Long-Haulers. Everyone there reports about a 9 month timeline for substantial improvement of the peripheral neuropathy symptoms. You could receive advice and support by joining that group. I suggest asking the neurologist to check your autoimmune antibody titer and also your alpha-2-globulin levels. (These are not routinely measured.) My titer increased but then increased again substantially about 8 months after the vaccine. I discovered in the earlier months, that I could control the pain by avoiding sitting completely. Apparently, my sciatic nerve and/or spinal chord was inflamed. My tolerance for sitting is now much improved.