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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 4 days ago | Replies (6026)

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@mznecie

My name is Charlotte, and I have been with a disease that is causing my neoraphy issue from my waist, to my feet. the flare up sometimes are unbearable.

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Replies to "My name is Charlotte, and I have been with a disease that is causing my neoraphy..."

Hi Charlotte @mznecie, I'm sorry to hear you still haven't found much relief for your neuropathy from Sarcoidosis that you mentioned in another discussion. Here's some information that you might find helpful.

"Intravenous immune globulin (IVIG) therapy, alone or combined with infliximab, may significantly ease symptoms of sarcoidosis-associated small fiber neuropathy (SSFN), according to a retrospective analysis study." --- Small Fiber Neuropathy Symptoms Eased by IVIG Therapy and Infliximab, Study Reports: https://sarcoidosisnews.com/2017/03/22/sarcoidosis-associated-small-fiber-neuropathy-in-a-large-cohort-clinical-aspects-and-response-to-ivig-and-anti-tnf-alpha-treatment/

Have you looked into IVIG treatments or discussed them with your doctor?

I understand what do you do to ease the neuropathy?