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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)
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@judyhodgern

I have been on Clofazamine for about a month and a half now and I have not had any problems with it —I live in Florida so I have a tan so if it’s coloring my skin I don’t know I haven’t had any kind of reactions with it at all.☺️🤞🤞🤞🤞🤞 I always take it with food like it says.

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anniepie | @anniepie | Nov 1, 2019

Thanks Judy @judyhodgern ! Your reply is really appreciated.
I almost laughed and cried when I read the facial skin and eye discoloration can be long lasting when taking Clofazamine and -- laugh or cry -- it affects between 75% and 100% of people who take Clofazimine. I mean -- where do they get all these awful drugs from to treat NTMs???? (Laugh). We really do have to put up with a lot and my heart goes out to everyone

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