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New to Cytoxan (cyclophosphamide)—advice and help appreciated

Autoimmune Diseases | Last Active: Jan 18, 2022 | Replies (24)
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@mermaid7272

Just had a long hospital and rehab stay for a near fatal bout of encephalopathy. Need some info or help or patient experiences about this horror disease. It was never really explained to
me. Am going to neurologist for a follow-up visit soon, but someone who has actually experienced this would help to put me at ease. Most important question is: can this re accure?

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Replies to "Just had a long hospital and rehab stay for a near fatal bout of encephalopathy. Need..."
Becky, Volunteer Mentor | @becsbuddy | Dec 26, 2021

Hello @mermaid7272 . I see that you’ve been on Connect before but now have a newer question. I hope you don’t mind, i asked one of the administrators to move your question to the Brain discussion where there are several different discussions on encephalopathy.
I, too, had encephalopathy caused by an autoimmune disease that attacked my brain. You are correct, it was so SCARY! But, I’m doing OK as long as i stay on my drugs
Do the doctors know what caused your encephalopathy?

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