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MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "Ginak. That’s certainly something to think about. I have coughed unproductively until I gag and my..."
Hi All! I have coughed for 5 years and thought it will never end. I have one vocal cord and Sjogrens plus RA so I thought that’s how it’s going to be for the rest of my life. But I stopped all the coughing 3 months ago and I still can’t believe it myself! In July I was tested negative for Mac and pseudomonas and that’s when I stopped coughing. I am not sure if it’s meds or results but it stopped at the same time. I still sip water at night because of the dryness in my throat because of Sjogrens but no coughing. So I do believe it will get better. Hugs to all Rita
@sounder27 Hi. I had high sensitivities to all that you stated and then some. I felt as if I needed to live in a bubble to avoid it all. I was like that for yrs until I was treated for mac & pseudomonas. These sensitivities are a hallmark symptom of mac infection. Fortunately, this all went away once the infection went negative. I hope that happens for you as well.
@ginak thanks very much for the info about Behavioral Cough Suppression Therapy (BCST) training. This cough is really, really frustrating sometimes. (Sometimes I have coughed so hard I have to wear an incontinence pad in case I wet myself -- that's never ever happened to me before! It's very undignified, laugh)
@sounder27 I also have trouble with coughing when I'm lying down. But once I fall asleep, coughing stops. I have water by my bedside at all times to try to lubricate my throat. Very annoying. Wish it would stop.