Hello @kate12345 and welcome to Mayo Clinic Connect. While I'm sorry to hear of your diagnosis of a Pancreatic NET, I'm glad that you found a place to get support. I related to your words, "I found this forum while obsessively Googling..." I found Connect the same way. In 2016, I was facing my third surgery for carcinoid cancer in the duodenal bulb and was beside myself. I was looking for support groups by googling NETs and Carcinoid and came upon Mayo Connect. Here is a link to my first post, https://connect.mayoclinic.org/discussion/i-have-recently-been-diagnosed-with-my-third-neuroendocrine-tumor-has-anyone/.

It was great to meet others who had this rare disorder and who had lived through it and shared with me about their journey.

You sound like you are approaching this diagnosis with a great attitude in that you want to connect with others and hear their stories. Since you do not mention symptoms of Insulinoma, I'm assuming that the NET to the pancreas has not affected your blood sugar levels. That is always a good thing.

Here are some other links to Pancreatic NETs that you might find helpful, https://connect.mayoclinic.org/discussion/pancreastatin-level-at-1500/. I would like to invite @elm60 to this discussion as she discusses her Pancreastatin level (I don't think you mentioned that level). She also talks of some of her symptoms.

Are you currently seeing a NET specialist? This is very important. General oncologists are not always the best to treat more rare forms of cancer. Here is a listing of NET specialists, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

If you don't mind sharing more, what symptoms were you having that led to this diagnosis?