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Anyone living with metastatic endometrial Cancer? What treatments?
Gynecologic Cancers | Last Active: Sep 5, 2022 | Replies (47)Comment receiving replies
OMG- so glad to hear from someone dealing with reoccurrence as well.
I meet next week with radiology next week.
I started in Jan 2021 with 6 rounds of Carboplatin/Taxol.
3 tumors and lymph node shrunk.
Then it was suggested to do Keytruda, it was suggested this would shut it down.
From May to Oct . One tumor grew three times bigger than when I started and was attached to other organs.
Oct.21 did a “curative “ surgery to take the tumor and cut areas where it was attached to get clear margins. It also gave me a colostomy bag since they had to cut the area of colon the tumor wrapped around.
Then on Dec.15 a new 1.7 inch mass showed up on lower pelvis.
So now meet with radiology to see if that is an option or start another type of chemo that may or may not shrink the tumor.
I have had at least some weeks to get stronger than I have been in a year.
I am at Mayo in Jacksonville. They have one GYN oncologist handling a lot of cases.
You have given me something to think about from questions.
I wonder how they can target one tumor with tentacles and not cook the rest of my pelvis.
Not even sure if they will say it is a good case.
How many rounds of radiation for you and have you had other treatments?
Replies to "OMG- so glad to hear from someone dealing with reoccurrence as well. I meet next week..."
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@miriam57 I know what you mean. We cancer survivors are in this group together. If one more person says to me "I'm sorry" as the beginning to whatever else they're going to say to me I might scream.
You have been though so much this year. You are the example of living with cancer. I'm glad to know you've had a bit of a rest from treatment and can go into whatever is next feeling stronger.
Tumor with tentacles. That's a good description and yes, how can they radiate without affecting a larger area of your pelvis? It's a good question to ask the radiation oncologist.
My partner (retired physician) says you never want to be that "interesting case". But that's me to a certain extent. After my hysterectomy in 2019 the cancer was staged 1a with a 5% chance of recurrence. And now I'm that 1 in 20 who did have a recurrence within two years of first diagnosis.
I have 25 sessions of external beam radiation scheduled. I'm halfway though that. Then I'll have two sessions of brachytherapy at the site where the cancerous tissue was found at my check-up visit in October. I did have an encouraging conversation with one of the radiation oncologists on the team today who told me that my recurrence was caught very early so that the prognosis is more favorable. Still, it's not like we can take a pill for 10 days and be cured as if this is a sinus infection. We survive, and we live with cancer. That's us.
Do you have a support network or group? A therapist for counseling you can talk to?
When is your appointment with radiation oncology? Will you come back here and let me know what happens?