Connect
← Return to Anyone living with metastatic endometrial Cancer? What treatments?
Discussion
Anyone living with metastatic endometrial Cancer? What treatments?
Gynecologic Cancers | Last Active: Sep 5, 2022 | Replies (47)Comment receiving replies
Hello @miriam57. Is your oncologist coordinating your care? Depending on the kind of cancer and stage there are so many different treatments. As @colleenyoung said when I've looked up my cancer (endometroid adenocarcinoma) on the internet so much of the information is not specific to me although does give me some good background information.
In my situation when recurrent cancer was found I had a referral to radiation oncology. I came prepared with questions to ask the doctor. He reviewed what had been found and what he recommended. Then it was up to me to decide if that's what I wanted to do. So I'm doing radiation treatment right now at Mayo Clinic in Rochester.
Had chemotherapy or another targeted therapy been recommended I would have asked all kinds of questions about what to expect. How long will I have to do this? What are the side effects and then ask myself how this would effect my quality of life? What about my other health issues? How does that figure in to radiation or chemotherapy?
When do you meet with radiation oncology? Will you then go back to your oncologist to discuss what you want to do? I felt and still feel overwhelmed with what I'm doing and being away from home for so long. How are you feeling about all of this?
Replies to "Hello @miriam57. Is your oncologist coordinating your care? Depending on the kind of cancer and stage..."
Connect
OMG- so glad to hear from someone dealing with reoccurrence as well.
I meet next week with radiology next week.
I started in Jan 2021 with 6 rounds of Carboplatin/Taxol.
3 tumors and lymph node shrunk.
Then it was suggested to do Keytruda, it was suggested this would shut it down.
From May to Oct . One tumor grew three times bigger than when I started and was attached to other organs.
Oct.21 did a “curative “ surgery to take the tumor and cut areas where it was attached to get clear margins. It also gave me a colostomy bag since they had to cut the area of colon the tumor wrapped around.
Then on Dec.15 a new 1.7 inch mass showed up on lower pelvis.
So now meet with radiology to see if that is an option or start another type of chemo that may or may not shrink the tumor.
I have had at least some weeks to get stronger than I have been in a year.
I am at Mayo in Jacksonville. They have one GYN oncologist handling a lot of cases.
You have given me something to think about from questions.
I wonder how they can target one tumor with tentacles and not cook the rest of my pelvis.
Not even sure if they will say it is a good case.
How many rounds of radiation for you and have you had other treatments?