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@tsc

Hi Judy, PMR is a relatively rare autoimmune disease that effects 52.5 in 100,000 people. About 30% develop Giant Cell Arteritis, which I also have. These diseases mostly occur in people 50 and older and the likelihood increases with age. Women get PMR at twice the rate men do, and there are genetic markers. The highest incidences of PMR and GCA are in Scandanavian countries. Carpal tunnel syndrome can also occur in patients with PMR (This info from Cecil and Goldman's Textbook of Medicine, Chapter on GCA and PMR). My background is mostly Soutern European, and for a disease that is relativey rare, my aunt and mother-in-law both had it.
I found saffron capsules - 88 mg - at Swanson Vitamins on line. On a scale of 1-10, the pain and stiffness of my PMR was a 10, something I will never forget. It got better after nine or ten months, but then, I got other weird symptoms, which were Giant Cell Arteritis. When I had PMR I still managed a daily walk and I couldn't understand how I could walk for so long and still feel so stiff, especially the backs of my knees. A doctor friend pointed out that I couldn't get blood flow to the area because the PMR was attacking my veins!
I think we are so lucky to have prednisone and other drugs to manage these diseases, despite their drawbacks.
Wishing you the best, Teri

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Replies to "Hi Judy, PMR is a relatively rare autoimmune disease that effects 52.5 in 100,000 people. About..."

Thank you, Teri- I read about genetics and PMR; I am English and Scottish. As far as I know, no other members of my family have PMR. I will see about the Saffron suggestion. I have the "back of the knees" stiffness and pain, and it gets pretty bad if I sit at my desk at work. Since I am new to these discussions, it's the first time I have heard about someone having the stiffness as I do. I am sorry you got the Giant Cell Arteritis, which doesn't sound like fun. May you get to complete remission (me, too). Grateful for the medications that help. Merry Christmas, Judy

What were your symptoms with GC arteritis? I've been having left-sided headaches for 2 years. Normal artery biopsy's in 2019 and normal blook work now. I got Covid a week ago and on day 5 started with bad pain in the back of my neck, shoulders and legs. Wondering if Covid could have triggered PMR. Still not sure if I have GC arteritis because my CRP was .04 on 1/25 and then jumped to .20 the next day when I got my positive Covid test.