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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)Comment receiving replies
@pfist & @ling123 Hi Ling! Thank you for posting this link. I found the article interesting. I hope that my long term use of cipo doesn't end up harming me. I do want to point out that the article mentions several times that the adverse side effects are RARE. It also says scientists BELIEVE that serious adverse side effects were caused by the flueroquilones (cipro, levaquin, etc.) 'Believe' and actual case studies are two different things. There are doctors out there over-prescribing with these drugs, but any good doctor knows when the risk outweighs the benefits. I feel like I'd rather take my chances with cipro than have mac continue to eat away my lungs. I do want to look into the hidden side effects of these antibiotics. I have noticed a lot of leg cramping and almost total loss of hand strength. I just chalked it up to age (60 yrs) and cramping due to dehydration.
Replies to "@pfist & @ling123 Hi Ling! Thank you for posting this link. I found the article interesting...."
@windwalker
@ling123
Yes Terri we just need to be informed and then decide if the benefit outweighs the risk of any drug we take. It did state that most adverse side effects don't ever get reported at all though. I know my good friend took cipro for uti and afterwards had several tears in her leg cartridge. I did mention it to her that it could of possibly be due to the cipro.
I know floroquines work really good on pseudomonas where many other drugs don't. I just hope they work on finding antibiotcs that work but don't have some of these side effects.
I have taken cipro in the past also and did feel achy I don't take it now. When I get pseudomonas they do a susceptibility test on it and there has been quite a few antibiotics that show they will work on it and we go with one of those.
Just want people to be informed and it may never effects one person where it would another. We're all so different one person's medicine can be another persons poison.
Take care Terri... I'm glad your doing well!
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@windwalker Terri, I agree with you. I can't think of a drug that does not have any side effects. Once ingested they are foreign substance in our body. But we absolutely need to weigh the pros and cons and try not to scare ourselves into quitting to fight the diseases that can have debilitating effects on our lives. All we can really do is to be vigilant and be educated so we can be one step ahead of adversities. After reading about the side effects of Ibuprofen, I was very alarmed and almost decided to completely stop using it. But after some research, I realized that just about all the pain killers have similar side effects. Unless I completely stop using it for the rest of my life, I will have to deal with such side effects. I know that as we are aging, it is not practical to make a decision like that. All I can do is try to cut back to the least amount that I need and bear the risk for it.