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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@sandykayhud

Thanks for the info. I am hesitant about taking the Arikayce because I am already battling voice problems as a result of radiation damage to my esophagus.
Let me know the name of the other med if you find out. The big 3 for 2 years did get rid of the MAC for a period of time but has returned. Your info has helped me alot...thanks and God bless you in your treatments.

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Replies to "Thanks for the info. I am hesitant about taking the Arikayce because I am already battling..."
Terri Martin, Volunteer Mentor | @windwalker | Jul 8, 2019

@sandykayhud Hi there. Your story of having the mac return is a common one. I have tested negative for mac since 2014. I have been on monthly maintenance dose antibiotics ever since to keep it from coming back. The return of mac or pseudomonas are more probable if you have bronchiectasis. Do you also have bronchiectasis?

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