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@jasmine321

@sandykayhud I started Arikayce in April. After the first week I started having hoarseness. After my second week, I had a follow up appointment with my pulmonologist and he told me to stop it for a week due to severe hoarseness. My voice got better and I resumed the treatment. I had to do the albuterol inhalation before the Arikayce, gargle with warm water after each treatment and I also drank warm water after. A week after I resumed the treatment, I started having hoarseness again. I had an appointment with the ID doctor last Wednesday and he stopped the Arikayce. He replaced it with another oral antibiotics called Linezolid 600 mg once a day. So I’m now taking the big 3 plus the Linezolid. He ordered CT scan in 3 months. I will take this Linezolid for 6 months and if the MAC doesn’t get better, he may replace it with this “stronger” medication but he will get the approval from the CDC. He said it’s very hard to get this medication, they have to submit a lot of paperwork. I don’t remember the name of the medication. I will see the pulmonologist this July, he may know what medicine the ID doctor is referring to.

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Replies to "@sandykayhud I started Arikayce in April. After the first week I started having hoarseness. After my..."

Is it Clofazamine

The hoarsness lets up after a couple/few weeks. Also it helps to do the treatment before bed immediately after your albuterol treatment. That way your vocal chords are resting and you aren't using them. So far hoarsness isn't a side effect I'd be concerned about with the success this treatment has had. I was hoarse for a couple weeks but now I'm not.