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Dysautonomia studies and ANS issues

Brain & Nervous System | Last Active: Jan 5, 2022 | Replies (6)

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@joannemm30809

Thank you for all this great information. I just wish that all these specialists I've seen over the last two years knew a lot of this information that maybe they could have been helping me along the way. They just tell me to go home and eat a lot of salt and write a recumbent bicycle. But they don't even know for sure if I have 100% if I have dysautonomia They have no idea.

I do not fit into any of the 15 categories of disorder know me. And the familiar disorder know me I would have known by now if I had that because I'm 61 years old and I never had any of the precursor symptoms of familiar disorder know me while growing up or even a teenager or an older adult and I'm 61 years old now. But I don't fit into any of the other categories either. And I did not fail the tilt table test so I do not have pots. One cardiologist said I have vasovagal the other cardiologist said I had dysautonomia and a Neurologist said I do NOT have any of those diseases but I have chronic anxiety problems. So for two years I've spent a ton of money and I'm still at square one.

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Replies to "Thank you for all this great information. I just wish that all these specialists I've seen..."

Dont accept the diagnosis of chronic anxiety. I heard that so many times even from the neurologist who found my diagnosis of autonomic small fiber neuropathy . He didn’t believe me not even for a second. He kept eluding to anxiety but a last minute thought he decided to order a skin biopsy. He only ordered it because I have severe urine retention which requires bilateral stimulators