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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
I was diagnosed with Bronchiectasis about a month ago after 15 years of clearing my throat and bringing up sputum and being told it is just post nasal drip no worries. I was put on Amoxicillin for 14 days and Everything has gone away. No more clearing throat, cough, sputum, chest tightness. However I was waiting to see my dr for follow up to let him know that I still had a full pain when deep inhaling on left side. He called me yesterday to tell me that they discovered MAC and he is referring me to an infectious disease specialist and I will be on antibiotics for 6 months to a year. At first I thought no biggie until I read all the horror stories. I have none of the symptoms of MAC. No cough, fever, have never experienced fatigue, no diarrhea, no weight loss, I love food and very much enjoy eating, no night sweats, chills. I don’t get it. Your post made me feel better about the meds and side effects. When I was researching I thought if I am not experiencing any ill effects then why do I want to take something that will make me ill.
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Hello @wal6578 . I understand your concern. I have been diagnosed with bronchiectasis as well as MAC. Originally my local pulmonologist said...the cure can be worse than the disease. We were to take a wait and see approach. Since that time, I discovered this group and found that inhalation of a 7% saline solution is a good protocol for clearing phlegm and, I believe, keeping the bug down. Since I had a mistrust of my local Dr, I also went to Mayo for a second opinion and for information that I had not received. (extensive) It was so very worthwhile for my peace of mind and for staying on top of this health issue. I too have a mild case of both with little symptoms other than excess phlegm, a little shortness of breath and some fatigue. I cannot tell you how good it was to get advice from someone that I trusted...along with the inclusion of advice to nebulize 7% saline, a suggested acapella for clearing the airway and attention to actually ridding me of my years of acid reflux which can aspirate into the lung. He said no need for drugs and possibly I may never need them. Anyway...I think you would benefit from a second opinion. I have peace of mind and the future is not so scary to me. He has me stay on top of my disease with yearly X-rays and sputum tests...and always have a script for a 2 week antibiotic in case of a flare-up. I hope you are in a similar place. I would certainly seek a second opinion, if only for peace of mind and to check the pain in your chest. Also, I have learned on this site that there can be a natural conversion of MAC. Wow! This site is a great source of info. Best of health and luck to you. Kate