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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
auntnanny. I am going to make an appt with the Mayo in Rochester. I remember that you told me which doctors that you saw there. I will be coming from Rhode Island and will also need a hotel for my son and me. Any recommendations that you could give me regarding specialists and hotels in the area would be much appreciated. I just had a car scan yesterday and my Mac has progressed much more than was anticipated. The coughing and sleep apnea have put a great strain on my heart and afib condition. I am getting very weak and exhausted.
Replies to "auntnanny. I am going to make an appt with the Mayo in Rochester. I remember that..."
Hi @sounder27, Thanks for your private message. I am responding to you here so that others like @jkiemen can also benefit from the information and those who have been treated at Mayo Clinic Rochester can add to my information -- although I don't think I can top all the great advice shared by @auntnanny! Who else has been to Mayo Rochester?
Mayo Clinic pulmonologists are part of an integrated team of highly specialized medical and surgical experts who work together. Whichever doctor you see benefits from the collective knowledge of the Mayo's MAC expertise. Here is the contact information for Mayo Clinic http://mayocl.in/1mtmR63
See the Visiting Mayo Clinic group for more helpful tips about hotels and staying in Rochester. There is a wealth of first-hand recommendations and experiences from members here:
- Visiting Mayo Clinic https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/
- What are your accommodation recommendations when coming to Mayo? https://connect.mayoclinic.org/discussion/what-are-your-accommodation-recommendations-when-coming-to-mayo/
You can also contact the Mayo Clinic Concierge Services – it is a free service that you can use prior and during your visit to help you find services, such as accommodations, transportation and things to do. You can contact them by email, phone, chat or in person during business hours:
* Phone: 507-538-8438
* Live Chat: https://www.mayoclinic.org/patient-visitor-guide
* Email: concierge@mayo.edu
* Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services
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sounder 27 Dr. Teng Moua is my doctor there and he's very kind -- if you look up pulmonologists on the Rochester list, you will see a photo and short biography about him. He will work hard to help you. I have preferred the Hilton Garden Inn -- they have a shuttle car available all hours for you and will take you and pick you up whenever you need. You don't have to do any walking. And.... if you are having difficulty breathing or feel you can't do the walking inside the clinic, there are a number of nice gentlemen waiting with a wheel chair for you when the shuttle car drives up. If you have no one with you, one of the gentlemen will see that you are taken where you need to go. It's really run wonderfully well and I promise you will like it there. It's unbelievable. You will get some discount on rooms at Garden Inn if you say you are with Mayo's. Everyone there is with Mayo's -- the whole town works around them. If you have any more questions I can answer, feel free to ask. I'm happy to tell everything I know about my experiences there.