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@lampstone

I am 71 years old. I was 67 when I began taking those same three antibiotics 3 times a week. After no improvement - I was increased to the same three antibiotics 7 days/week. I continued this regimen for about 4 years.
I began to think I was showing severe signs of dementia after having difficulty finding local area destinations I had known for 30 years. I even had trouble finding my way around Mayo after doing the same routine appointments three or four times a year for 4 years! In addition to confusion and temporary memory loss while on the antibiotics, I also had terrible mood swings and paranoia.
I shared all of this with my Mayo pulmonologist. Since my bacteria count was so low by 2018, it was believed I needed a break; I was put on a “med holiday” for one year. Yay!
During my year off the antibiotics, I realized I was able to find my way around town with no issues, and my “feeling lost” and “in a fog” while at Mayo was also gone. The mood swings, paranoia, and confusion were totally gone. I felt so much better mentally.
But here I am again a little over a year later, my lung health is not good again - and, I am going to find out tomorrow what the new plan is. I do know that my mental health will also be considered when choosing antibiotics. I am so glad and very thankful I have a pulmonologist I can trust. Don’t be afraid to ask questions and to share how your lung health treatment might be effecting your general health. Hoping thus helps a little. And - please tell stepmom’s pulmonologist what she is experiencing. Be Blessed.

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Replies to "I am 71 years old. I was 67 when I began taking those same three antibiotics..."

@lampstone Hi there. I am sorry your mac is back, but not surprised. My Mayo doc has me on maintenance (preventative) meds although I have tested negative since 2014. It is a light dose of 10 day a month antibiotics. Sometimes a 28 day of tobramycin to keep the pseudomonas away. Were you also diagnosed with bronchiectasis?

@lampstone Thanks for letting us know this Pat -- it explains a lot to many of us. Please keep in touch. Your advice and kindness is much appreciated. I wish all the best for you -- please let us know what comes next and how you're going. Hugs to you