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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)

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@pitepalten

Yes did an EMG, nerve conduction, MRI on my brain. My neurologist just asks me what medecine I want. Don’t really want any but I’m going have to do something. I’m taking Cymbalta. Don’t think it is doing anything. Need to find someone that can help.

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Replies to "Yes did an EMG, nerve conduction, MRI on my brain. My neurologist just asks me what..."

Yes I agree. Not many answers to our condition. I too take Cymbalta, 30 mg once a day plus a total of 300 mg of Lyrica, not sure if it’s helping but also afraid to stop. I have had most procedures done to me. It was confirmed in August it’s PN. From where nobody knows. My doctors suspect maybe Covid or the vaccine itself.

@pitepalten, I'm sorry to hear you haven't found anything yet that helps with your burning pain. I was reading your earlier posts again and it does sound similar to cutaneous dysesthesia. Here is some information I found that I think might be describing the type of pain you are feeling.

"Cutaneous dysesthesia is characterized by a feeling of discomfort when your skin is touched. The symptoms, which can range from mild tingling to ..." --- Everything You Need to Know About Dysesthesia - Healthline: https://www.healthline.com/health/dysesthesia

Was your neurologist able to provide a specific diagnosis?

Good afternoon @pitepalten, Yes, I agree. with you. You need some help. Cymbalta--duloxetine is my go to for anxiety control. Anxiety creates pain which creates more anxiety.......which.....and on and on. My clinician reworked my Cymbalta dosage (increased) and changed the time to take it...to morning. So, I now take 90 mg and my day starts on a much better pain status.

I also use different dosages of medical cannabis a couple of tmes throughout the day and right before bed. I then add 600mg of gabapentin at bedtime to shut down the tingle tangles.

Let me know if you would like more information. I find that working in an environment of shared decision making with my clinician really helps hit the target a bit better.

May you be free of suffering and the causes of suffering.
Chris