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@auntieoakley

Only you can make these decisions, but I understand the need to discuss these things. What I know about this is that it is not like the neuropathy we get from chemo that sticks around after we are done. It is a temporary condition caused be leakage of the medicine through the capillaries in your hands and feet. When the medicine stops, so does the problem.
Much like the your previous regimen, if the side effects are too much you can discontinue the drug, only in this case it will end the side effects as well.
On the pro side, you may not even get this if you didn’t get it before, because adriamycan, one of the drugs you took initially is one of the worst offenders of this.
On the con side if you work with your hands or on your feet and you do get it, it can be debilitating.
I am hoping that someone else here might chime in with a little more personal history with this, I had a tiny bit of disturbance in my hands and feet but nothing to really slow me down. I don’t know if you have read this article but it does have some good information.
https://www.breastcancer.org/treatment/side_effects/hand_foot_synd
Do you have a good trusting relationship with your doctor? Did he offer any alternatives to xeloda? How long of a regimen is he recommending?

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Replies to "Only you can make these decisions, but I understand the need to discuss these things. What..."

Yes a good relationship with her. No, she didn’t offer an alternative other than to say I had the option to take this additional treatment. She has always let me know of other options if they were relevant in my particular case so trust her.

I didn’t know the neuropathy I developed during AC-T was permanent. I thought the reason we stopped treatment early was to prevent any permanent damage.

Thanks for sending the article, I’ll check it out.