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@windwalker

@kathyhg Hi Kathy! I really liked your last sentence. That is the precise intention of this group. I just met with my Mayo doctor last week and we discussed how each individual with mac should have a tailor-made treatment plan. Beware those that only use the Big 3 treatment plan or want to jump on those three meds at the first inclination of mac infection. BTW, my dr also said again that the biggest culprit of bronchiectasis and mac is GERD, otherwise known as acid reflux. If you treat that, then you may likely stop the infection and reinfection of mac. Many people have what is known as silent reflux; meaning there are no apparent symptoms. I make a list of questions before I see my dr also. When will you see your mac specialist?

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Replies to "@kathyhg Hi Kathy! I really liked your last sentence. That is the precise intention of this..."

I am seeing the respirologist on June 19 and will get a referral to the Mac specialist either from him then. Not sure how long it will take.
I’m seeing a gastroenterologist in early September as I’m not aware that I have GERD but will discuss with him. How great would that be if treating GERD protected me in the future! Thank you for this encouragement.

I have learned so much about a disease that I’d never heard of before last year, most importantly that I need to educate myself and be my own advocate.

I am thankful that I found this forum as Mac is an isolating disease and the forum is one place where I don’t feel like I’m burdening others with yet more Mac talk :).