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Triple Negative Breast Cancer: What treatments are you having?

Breast Cancer | Last Active: Sep 6 11:41am | Replies (244)
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@imlistening21

Thanks for your response. You’re right, Xeloda isn’t a new drug but according to my oncologist using it after radiation, like in my case, is fairly new she said. I have neuropathy that developed during my AC-T chemo therapy and I continue to have it 5 MOs after the initial chemo treatment. I take medication that relieves the nerve pain. From what I’ve read about Hand/Feet (or foot) syndrome it sounds much worse than just hot/cold sensitivity (which I don’t currently have) and can include peeling and blistering skin, cracking and in severe cases may make it difficult to wear shoes and walk. That’s what I’m most worried about and not being able to use my hands. Yes, I’ve discussed this with my dr but she left the decision to me so I’m trying to get as much info as I can.

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Replies to "Thanks for your response. You’re right, Xeloda isn’t a new drug but according to my oncologist..."
Chris, Volunteer Mentor | @auntieoakley | Dec 18, 2021

Only you can make these decisions, but I understand the need to discuss these things. What I know about this is that it is not like the neuropathy we get from chemo that sticks around after we are done. It is a temporary condition caused be leakage of the medicine through the capillaries in your hands and feet. When the medicine stops, so does the problem.
Much like the your previous regimen, if the side effects are too much you can discontinue the drug, only in this case it will end the side effects as well.
On the pro side, you may not even get this if you didn’t get it before, because adriamycan, one of the drugs you took initially is one of the worst offenders of this.
On the con side if you work with your hands or on your feet and you do get it, it can be debilitating.
I am hoping that someone else here might chime in with a little more personal history with this, I had a tiny bit of disturbance in my hands and feet but nothing to really slow me down. I don’t know if you have read this article but it does have some good information.
https://www.breastcancer.org/treatment/side_effects/hand_foot_synd
Do you have a good trusting relationship with your doctor? Did he offer any alternatives to xeloda? How long of a regimen is he recommending?

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