Hi Colleen. To answer your question about what had helped me to stave off having the lung transplant before; I believe it was taking the monthly prophelactic antibiotics. What is different now? Lungs are in decline and it is a mystery as to why. I can only presume that I have a progressive lung disease that is going to take it's course no matter what. I am living my life as usual although tripping on oxygen tubing all of the time. I have even managed to close it in the refigerator twice. LOL!

Hello Colleen. I just got two ZOOM appts set up. One is with Margie, a transplant nurse, the other with Dr. Narula. These meetings will be about discussing whether or not I am a candidate for the lung transplant and then go forward with the pre-qualifying tests. If my health and attitude pass, then I will get listed. I am more frightened about the end stage of this disease and struggling for air than I am of the transplant. I guess by that point I will really look forward to the transplant. I have been prepping myself on my end by down-sizing my belongings in preparation for a move to Florida, getting tests done locally like mammogram & colonoscopy, lifting weight/walking, and eating high calorie food to keep fighting weight on. Despite everything, my attitude is sunny every day. Time is precious and I won't waste a minute being anything but happy.