← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Discussion
Comment receiving replies
@angiejohnson

@sounder27 I just thought I would chime in on the Arikayce. I have been on it since January 16. Interesting that your doc says one week on, one off. I am recommended daily, but when I lost my voice my doc cut it back to 3 times per week. That has really been my only side effect. I am back to taking it daily, as that is what is recommended by the drug company. It is very expensive, but they provided me a copay card. I pay nothing for it.

Jump to this post


Replies to "@sounder27 I just thought I would chime in on the Arikayce. I have been on it..."

angiejohnson. I am researching the Arikayce now and am wondering who the “they” that you refer to as who provided you with the copay card. Was it your doc or your insurance?? I am on Medicare with an insurance in my part D coverage.

angiejohnson. I just reread you post and realized it was the drug company. Did you contact them directly?