Has anyone been diagnosed with Abdominal Wall Pain

@sawah3 I have chronic abdominal wall pain at a level 8 and 18 hrs per day. Have had the same pain over two years now and was avg level 7 last year. Like your daughter and more I have had the MRI, CT Scans, blood work, gall bladder tested, bladder checked and had many different injections. My pain is now pelvis to xiphoid. Hurts to walk, driver over bumps, do steps etc because of the ab wall moving. Mine is 8 inches wide or so down the middle. When I wake up early due to pain and urinate right after I am back to 8 to 8.5 even. Pain more above navel and hurts to bad to lay back down, cant fall back asleep. I dont throw up but some light headed and stomach nausea do I sit up in bed for hours. Pain meds and antidepressants dont work for my pain. I am trying to line up a celiac plexus block with a pain mgt doctor. My pain doctor from last year doesnt do those, the thoracic and intercostal didnt help. Trigger pt didnt help. The second block they tried over a year ago in the ilioinguinal and iliohypogastric with steroids helped after a few days and then last for a few days and quit. I think I need nerve ablation. I dont though have any previous injury or surgery to attribute to. Your daughter should look into those lower nerves being pinched, trapped or injured and maybe just needs released. I am at wits end on pain, just even getting a 25% reduction for 4 hours would per day would be OK until better arrived. Its very hard to find a doctor that is familiar with abdominal nerve pain and how to investigate and treat it. Not every pain is a gall bladder or appendix. I saw a plastic surgeon and he didnt think my diastasis from navel to xiphoid had anything to do with it. Scans are clear so you are left with the nerves that mess with the muscles. I can't get my nerves to shut off. What about Ketamine infusions or other IV infusions for pain, not one doctor of mine has brought this up. Oxy and Hydro did nothing for me at the 15-20mg level. I'm not sure nerve pain in the abdomen responds to pain killers or antidepressants. We both need a lot of help because your daughter will have or has depression as its so hard for kids to deal with this. I finally cracked some mentally as I dont want to talk on the phone with many or see many at all. My biggest issue besides pain is now for the last 3 months loss of appetite. I have lost 11% of my total from June. I am not under weight but having a hard time wanting to eat 1500 calories per day. Medical Cannabis so far wont cut it for me or doesnt help much anymore. Kids can't do cannabis or even certain adult drugs so keeping them going emotionally is key, hope you can find a good pain mgt doctor in your area. I have about exhausted my town of St Louis/2mm people. I have a Mayo appt 2nd week Feb in MN but will be hard to survive till then. Chronic pain needs hope or something else to try next to keep you going.

@rt061069
To clear up any confusion, ACNES is an acronym that stands for "anterior cutaneous nerve entrapment syndrome". It is completely different from acne, the skin disease, which is not an acronym. Best, Hank

richman54660, Thanks for the info. Mine is a very deep rooted pain and not caused by any scarring, It is hard to explain, but it's in my left abdomen and is relentless and never ends. I do have it somewhat manageable, but pain meds won't work for this and I will soon be off all of them in time. I just hope I can sleep without the meds. I have a hard time sleeping as it is now.

RBassett, Many doctors also implied that my condition was psychosomatic because they missed the ACNES diagnosis. It took a year and a half before ACNES was confirmed. I hope that you are truly convinced that it's psychosomatic and that hypnotherapy is available to you and that it helps. Take care of yourself OK?

I’m in the throes of dealing with what you describe, onset recently pursuant to IBS. I’m curious if you have neuropathy or other neurological related affliction?

I do not know what IBS is but my issue was only ACNES which I was cured of once T8, T9 and T10 were cut via Robotic Laparoscopic surgery.

I do not know what IBS is but my issue was only ACNES which I was cured of once T8, T9 and T10 were cut via Robotic Laparoscopic surgery.

@rt061069
To clear up any confusion, ACNES is an acronym that stands for "anterior cutaneous nerve entrapment syndrome". It is completely different from acne, the skin disease, which is not an acronym. Best, Hank

Hi, I have had two trigger point injections, with no success for what I call spasms. Mine is due to gastric lapband damage. I have been to so many doctors with no success. I finally went back to the bariatric doc, and he said it must be nerve damage. So I started researching abdominal pain, and nerve damage. I came upon ACNES, and it fit me to a T. I went to a neurologist thinking they would know about it. He was extremely rude, and treated me like I was crazy, said he never heard of ACNES, and doubted any other neuro knows what it is. So I left angry. I then started to look for a doc who works on pain. Finding a clinic who works with abdominal is hard. But I found Dr. Lynch here in AZ, and he had info on his page about researching ACNES. So I scheduled a appt. I got a trigger point injection... they were calling it myalgia. My second trigger point, was with Dr. Lynch, I brought up Acnes, and he looked at me, in wonder I guess you might say. I wanted to know if they actually diagnosed me with it. He stated that trigger point injections don't work well for that problem. And wanted me to schedule a in office visit with him to discuss it. In the mean time, I had a appt for med renewal, and I mentioned it. She said let me call the doc, Dr Lynch was not available, so she called Doc McJunkin. He said I needed a neuroma percutaneous nerve injection. I am scheduled to have that done tomorrow, and then hopefully a nerve ablation following if it is successful. I was previously told a ablation can not be done on the stomach. It actually is not the stomach per se, it is abdominal, up and to the left of my belly button, where the port for the lapband used to be. Dr. Lynch said it can be difficult, as there are so many nerves, it can be hard to identify which one is causing the pain. Let me tell you, I am very glad I brought it up to Dr. Lynch, because as I say, they were just treating me for myalgia, and no diagnosis for ACNES. Therefore receiving the wrong treatment, for what I think it really is. She asked me if I self diagnosed, and I said Yes , after doing much research, I am positive that this is, what it is. So my injection tomorrow is actually before my consult with Dr Lynch next Monday the 11th. Dr Lynch has done a incredible amount of research on ACNES, and he told me he has had one other patient with this. And there is a different procedure they can do, and that the other patient had great success. I am assuming that it is this other injection, followed by ablation, as Dr. McJunkin is familiar with ACNES as well. So we will see. I have suffered with this pain since 2007, and I am so tired of it. I pray I get some relief. I hope this is not too confusing. Pills have never worked for me. Medical Cannabis in different forms has helped very little. They prescribed me a pain cream, from the Potters House of Apothecary, I use this when I have a spasm, and it does seem to help a little. I hope this helps. Susie