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@suzyqueue

I was diagnosed in January 2018. Still to this day - no improvement. I've had things get worse then get a little better but not much improvement of the initial damage done in my lungs. I'm now on the inhaled Amikacin along with the big 3 still. Hopefully it will help.

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Replies to "I was diagnosed in January 2018. Still to this day - no improvement. I've had things..."

Suzyqueue. Since I am not able to take the big three my pulmonary doc is talking about the amikacin or Arikayce. How is that and is it expensive??? Ate you feeling any side effects??

@suyqueue Hopefully it will help, it helped me a great deal and the side effects were minimal. Take Care

@suzyqueue Thanks Suzy, and good luck. Hugs to you

@suzyqueue Hang in there and stay on your meds. The Amikacin seems to have helped @heathert. Keep us posted.