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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@windwalker Terri, you've said it took you 12 months to seroconvert when you recovered from your illness. And I know it has taken a while for others too.
I just had my scans after the first 6 months of treatment with the Big 3.
I didn't expect to have seroconverted yet, but I kind of expected some improvement. It was a real shock to find out from the pulmonologists there's been no improvement at all.
I've fully complied with the treatment, but it hasn't reduced the amount of nodules and granulomas in my lungs. M. Intracellulare is tough to get rid of because it's mostly in a biofilm state, but I was hoping for a little improvement.
Did many of you show at least some improvement after 6 months? Or did it take much longer? Did anyone with no improvement at 6 months, later go on to recover?
What did you find to help you stay positive and keep waiting for improvement?
I really appreciate all your help and kindness.
Replies to "@windwalker Terri, you've said it took you 12 months to seroconvert when you recovered from your..."
@anniepie @windwalker I think at 6 months after starting they said things were about the same "maybe slight improvement in one area" but my last one was worse in one area and a bit better in another.
@anniepie Sorry to hear that but it can be quite typical, I was the same, it took Inhaled Amikacin to knock mine.
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I was diagnosed in January 2018. Still to this day - no improvement. I've had things get worse then get a little better but not much improvement of the initial damage done in my lungs. I'm now on the inhaled Amikacin along with the big 3 still. Hopefully it will help.