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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@chinasmom Hello. I had a full panel of genetic testing done at Mayo in 2016 when they feared I may need a double lung transplant. They had to be sure I was totally healthy enough to go through with it. I was CF negative and cancer negative. l am not sure of all that I was tested for, but the tests did show every single thing I have been exposed to in my life due to the antibodies they found. I was surprised at some of the findings. For example, it showed I had been exposed to Hep C, yet I do not actually have it. I know who exposed it to me; my fiancée when I was 21. I also had Epstein Barr, which I never knew I had had mono. And a few other minor things. It was amazing to me that your entire health history can be traced with testing. Why are you interested in having a genetic work-up? Are you suspecting anything in particular?
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@windwalker , Thank you for getting back to me so quickly. The DNA Test is an at home one that is from mayo clinic and then sourced out. It was heavily advertised around last Christmas and again at Mother's Day. It was sent directly to my e-mail hence my resent curiosity of the test. It is not something the doctor would order you just buy it at the mayo clinic website for 149.00. I would do it if anyone else had good information from it. I have so many diseases that I'm surprised I don't syndrome after my name. I would welcome any new information thru reliable testing. So I am asking the group if anyone has used this and had received helpful information from it. Thank you so much for your tireless devotion to our group. You really stepped up after we lost our group leader. You are loved and appreciated ♡♡♡
Becky