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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@yayaaz

Were you able to get Arikayce from your pharmacy? My aunt is having difficulty getting the drug. The 2 pharmacies close to don’t have it and can’t get it. She is 89, and can’t travel far to get the medication. Is it possible to order the drug through the pharmacy?
Thank you

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Replies to "Were you able to get Arikayce from your pharmacy? My aunt is having difficulty getting the..."
Ethan McConkey, Moderator | @ethanmcconkey | May 10, 2019

Hi @yayaaz, per @auntnanny's suggestion, here is a link to the Mayo Clinic Pharmacies page where you can find the contact information she was referencing: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/pharmacies

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sounder27 | @sounder27 | May 10, 2019

Yayazz. I just received a full pamphlet from my pulmonologist about Arikayce. It is used with a nebulizer system called Lamira Nebulizer System. At the start of treatment they send 2 shipments of a 28 day supply of Arikayce and the nebulizer. Going forward they send monthly shipments of the 28 day supply of the Aricayce. It has to come from a specialty pharmacy and you can go to ARICAYCE. com/ instructions to watch a step by step video on how to use the nebulizer. The drug is a liposomal suspension. It does have some noteworthy side effects and I would imagine that you have to be monitored quite closely while you are taking it. I hope this helped.

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