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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@angiejohnson

@sounder27
I have been on Arikayce since Jan 14. It has dramatically reduced my MAC, evidenced on chest CT. I had a lobectomy 4 weeks ago to get rid of the majority of the disease and damage from it. I have only had loss of voice as a side effect.

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Replies to "@Sounder27 I have been on Arikayce since Jan 14. It has dramatically reduced my MAC, evidenced..."
sounder27 | @sounder27 | May 9, 2019

Thank you so very much for your info. I was concerned about the side effects, but I am thinking that it may be worth a try.

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yayaaz | @yayaaz | May 10, 2019

Were you able to get Arikayce from your pharmacy? My aunt is having difficulty getting the drug. The 2 pharmacies close to don’t have it and can’t get it. She is 89, and can’t travel far to get the medication. Is it possible to order the drug through the pharmacy?
Thank you

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