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Update On Treatment of MAC

MAC & Bronchiectasis | Last Active: Feb 12, 2022 | Replies (111)
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@almap

This is such a difficult disease to treat and everyone responds differently. A mentor on this site advised us to press into our Infectious Disease doctor about collaborating with Jewish National Health in Denver. We found out he does! Finding good doctors is key. Good luck and don’t give up!

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Replies to "This is such a difficult disease to treat and everyone responds differently. A mentor on this..."
Sue, Volunteer Mentor | @sueinmn | Dec 16, 2021

Thanks for sharing about your doctor collaborating with NJH. I talked to my primary, and she said she only refers me to docs and other professionals who "play well with others" even if they are outside her system, because that is the way to get the best care. Being in MN, we have a lot of people who connect often with Mayo, but also with NJH, Stanford & others as needed.

And this is a good reminder to "be your own best advocate". You might not be able to travel to Mayo, NJH, etc due to your health or insurance coverage, but you sure can ask your doc to consult with the best!

Sue

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