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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
It has been a awhile since I posted anything but still reading all the emails from the sidelines. Wondering if anyone has used the mayo clinics genetic testing and was it helpful. I am thinking about getting one.
But Money is tight.
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@chinasmom Hello. I had a full panel of genetic testing done at Mayo in 2016 when they feared I may need a double lung transplant. They had to be sure I was totally healthy enough to go through with it. I was CF negative and cancer negative. l am not sure of all that I was tested for, but the tests did show every single thing I have been exposed to in my life due to the antibodies they found. I was surprised at some of the findings. For example, it showed I had been exposed to Hep C, yet I do not actually have it. I know who exposed it to me; my fiancée when I was 21. I also had Epstein Barr, which I never knew I had had mono. And a few other minor things. It was amazing to me that your entire health history can be traced with testing. Why are you interested in having a genetic work-up? Are you suspecting anything in particular?