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Pacemaker recipients: Looking for support from others

Heart Rhythm Conditions | Last Active: 13 hours ago | Replies (497)
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@peach414144

Thank you for caring and sharing. My problem is a revolving one. I have hypothyroidism for over thirty years. I now have primary hyperparathyroidism (which was originally thought to be secondary hypothyroidism). It is doing death to my kidneys. Finally after much complaining the doctor wants to do a nuclear test on the parathyroid's and whatever else is part of this. It truly frightens me. I am reaching out to Norman Parathyroid in Tampa for help. My mind goes around in circles and is also being affected by this. What a trip this is as though to the moon and back or perhaps Mars. Hangin on with all my might. There is the posability we will be talking again. Peach

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Replies to "Thank you for caring and sharing. My problem is a revolving one. I have hypothyroidism for..."
Sue, Volunteer Mentor | @sueinmn | Dec 16, 2021

Hi Peach - I saw your name pop up, and even though I don't have a pacemaker, I thought I would take a look.

I see you are dealing with hyperparathyroidism, and working with your docs to try to solve the puzzle. You mentioned fear of the nuclear scan - is it the word that is making you anxious, or have you had a problem with a scan in the past?
I recently had a nuclear scan to diagnose a different problem, and having had them in the past, I was a little nervous myself. I remember many years ago, when they did a scan on my thyroid, that I had to isolate for 48 hours afterward and even stay home from work.

My doc and the ER doc were surprised by my reaction and kept reassuring me that it was "no big deal." I arrived for the scan, and asked what my limitations would be afterward - the tech was surprised until I told her about my previous experience. She said the process has been refined, and the equipment is much more sophisticated now. Much less radioactive material is used than in the past, what there is is eliminated quicker, and there are no restrictions.

I hope this will help ease your anxiety - if lying still in the machine is a problem, you could ask your doc for a pre-med to make you feel better.

I hope the tests will find the source of your problem. Good luck!
Sue

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