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@sounder27

Auntnanny. Saw my doc today. Asked him about Toby and he said it was made to target pseudomonas rather than Mac. He gave me a pamphlet about an inhaled antibiotic called Arikayce, a liposomal form of the antibiotic amikacin. He is ordering me a bebulizer with saline and said to continue using the Resprivest morning and evening. This is time consuming when I need to be at work early in the morning. I have also ordered the broncolin/propolis cough syrup which is due to arrive in 2 days. I am to consider the risks of the Arikayce and let my doc know if I want to try it. It can cause allergic inflammation of the lungs and hemoptysis which can be “common” side effects.

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Replies to "Auntnanny. Saw my doc today. Asked him about Toby and he said it was made to..."

@sounder27 Hi, I was in the trial for Arakarice for a year and it was great , It really knocked my MAC back, only side effect was loss of voice which was sorted with Strepfen loengers , rinsing mouth after inhalation and inhaling just before bed so I diddnt talk after till morning. All the best Heather