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beachdog (@beachdog)

ONIVYDE irinotecan liposome

Pancreatic Cancer | Last Active: Dec 20, 2021 | Replies (7)

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@beachdog

Yes, very similar pattern and treatment regimens. Your wife had a longer NED interval than my wife. Her post distal pancreatectomy surgery CA19-9s increased very gradually for 10 months then rocketed up for 2 months when a scan revealed an ovarian tumor. After the ovary surgery the GAC and GA cycles initially dropped the CA19-9s but they never got below 200 before starting a rapid rise.

The same day that our local oncologist told us about ONIVYDE, the Moffitt Cancer Center contacted us about a trial. We'll probably start the ONIVYDE while she goes through the extensive screening for trial eligibility.

Happy to hear your wife has easier side effects so far. We'll pray she gets good results. Let's keep each other posted here.

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Replies to "Yes, very similar pattern and treatment regimens. Your wife had a longer NED interval than my..."

Will do. Also she has been on Creon since surgery in 2015 and has been very good for her.

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